Health Communication Links
Select a topic below to see the available linked resources
AGED / AGING
What Are We Going To Do With Dad? J Winakur Health Affairs, V24#4, 1064-72
Project HOPE http://content.healthaffairs.org/cgi/reprint/24/4/1064
How much do health literacy and patient activation contribute to older adults' ability to manage their health? AARP 2005 http://assets.aarp.org/rgcenter/health/2005%5F05%5Fliteracy.pdf
Identifying Medicare beneficiaries with poor health literacy skills : is a short screening index feasible? AARP 2005 http://assets.aarp.org/rgcenter/health/2005%5F01%5Fliteracy.pdf
How Old is Old? MetLife Mature Market Poll on Attitudes about Age – Zogby Poll (Jul 2005)
http://www.metlife.com/WPSAssets/80674423201122297968V1FHow%20Old%20is
%20Old.pdf MetLife
Beyond 50.05 : a report to the nation on livable communities : creating environments for successful aging AARP 2005 http://assets.aarp.org/rgcenter/il/beyond%5F50%5Fcommunities.pdf
BEHAVIORAL & SOCIAL SCIENCE / HEALTH PSYCHOLOGY
Resources on Institutional Review Board and Human Subjects Research (Institute for Communications Research) http://www.comm.uiuc.edu/icr/faculty/research/ICR_IRB.html
Integration of Primary Care and Behavioral Health:Report on a Roundtable Discussion of Strategies for Private Health Insurance (30 p., Fe 2005) from a 2004 roundtable convened to discuss strategies. http://www.bazelon.org/issues/general/publications/RoundtableReport.pdf
Lecture notes of Frank Barrios, U No. Iowa, to accompany a Health Psychology course (syllabus at) http://fp.uni.edu/barrios/syallbus%20summer%202005.htm
Notes at http://fp.uni.edu/barrios/Lecture%20Notes.htm
See esp, What is Health Psychology http://fp.uni.edu/barrios/chapter_1.htm
Health Behaviors & Health Promotion http://fp.uni.edu/barrios/chapter_3.htm
BIOETHICS
Ethics links – an amazing list of resources at
http://www.gfmer.ch/Medical_journals/Ethics.htm
Codes of ethics Online from the Ctr for the Study of Ethics in the Professions
http://ethics.iit.edu/codes/
Online Ethics.org (Case Western) http://onlineethics.org/reseth/mod/index.html
CANCER
Beyond the barriers: providing cancer information and support for black & minority ethnic communities. A report by CancerBACUP (UK, 2004, 80 p.)
http://www.cancerbacup.org.uk/content/files/News/Press/
Pressreleasesstatements/2004/1076693629/Beyond%20the%20Barriers.pdf
Breast Cancer Treatment Guidelines for Pts Version VI, NCCN, Sept 2004 includes decision trees http://www.nccn.org/patients/patient_gls/_english/
_breast/contents.asp
More NCCN cancer education/guideline links http://www.nccn.org/
CHILD / ADOLESCENT
The Ethics of Research with Children
http://onlineethics.org/reseth/mod/childres.html
Going Without: America’s Uninsured Children Lack (8/04/05) report for RWJF released Aug 2 http://coveringkidsandfamilies.org/press/docs/2005BTSResearchReport.pdf
Covering Kids: Health Insurance Matters
http://www.healthinschools.org/coveringkids.asp
The Autistic Child: InFocus Issue Brief.
http://www.healthinschools.org/focus/2005/no2.htm
Childhood Overweight and School Health Services: Survey Results onCenter for Health and Health Care in Schools site suggest that altho BMI measurement in school is common, communication of the results to families or a child's doctor is not
http://www.healthinschools.org/sh/overweight.asp
The State of Our Youth, 2005-2006 (8/10/05) survey of the thoughts and opinions of American teenagers released by the Horatio Alger Assn
http://www.horatioalger.org/pdfs/state05.pdf
Parental Reports of Emotional and Behavioral Difficulties (NIMH & 2005 Federal Interagency Forum on Child and Family Stats)
http://childstats.gov/americaschildren/spe3.asp
CLINICAL / PROVIDER-PT / MED ED
The Future of Academic Medicine: Five Scenarios to 2025 (Milbank Quarterly, Jul 2005) http://www.milbank.org/reports/0507FiveFutures/0507FiveFutures.html
More Milbank reports
http://www.milbank.org/reports/reportstest.html
Communicating with patients : advice for medical practitioners / National Health and Medical Research Council, Australian Govt, c2004.
http://www.nhmrc.gov.au/publications/_files/e58.pdf
The Future of Academic Medicine: Five Scenarios to 2025 S Awasthi, J Beardmore, J Clark et al on behalf of the International Campaign to Revitalise Academic Medicine Milbank Memorial Fund, Jul 2005 at: http://www.milbank.org/reports/0507FiveFutures/0507FiveFutures.html
Using standardized patients to enhance cross-cultural sensitivity LE Buenconsejo-Lum, GG Maskarinec http://www.apfmj.com/3rd_issues/originart7.htm
The Supervisor-Trainee Relationship (ethics)
http://onlineethics.org/reseth/mod/advis.html
NIGHTINGALE Nursing Informatics Terminology Database
http://nightingale.nurs.uoa.gr/
COMMUNITY
Community Leaders' Blueprint for American Health Care Policy. Communities Shaping a Vision for America's 21st Century Health and Healthcare, an initiative which Wye River Jan 2005
Complete rept (157 p.) http://www.wrgh.org/docs/feat_phase2_report.pdf
Exec Summary (9 p.): http://www.wrgh.org/docs/feat_phase2_execsum.pdf
National Study on Consumer Health Values, Field work: Dec 2004 [Wye River Group & Foundation for American Health Care Leadership., Harris Interactive 2005]
http://www.wrgh.org/docs/harris.pdf
Combined report on the policy blueprint and consumer survey. Jan 2005] http://www.wrgh.org/docs/blueprintandharris.pdf
Is Community Informatics good for communities? Questions confronting an emerging field
R Stoecker V1#3(2005)
http://ci-journal.net/viewarticle.php?id=14&layout=html
COMPLEMENTARY AND ALTERNATIVE MEDICINE (CAM)
A Scientific Look at Alternative Medicine TJ Wheeler, PhD On-line reading for Jan 25, 2005 bibliography http://biochemistry.louisville.edu/education/canc.htm
Salt in Your Sock and Other Tried-and-True Home Remedies, Dr. Lillian Beard Web cast from National Book Festival 06/07/05, 70 min
http://www.loc.gov/today/cyberlc/feature_wdesc.php?rec=3703
COMPUTER-MEDIATED COMMUNICATION (CMC) / HCI
The Topology of Auditory and Visual Perception, Linguistic Communication, & Interactive Written Discourse. E. Dresner 2/2005. from language@internet 2/2005. http://www.languageatinternet.de/articles/161/Dresner0607_DOULOS.rtf.pdf
DISABILITIES
Regulatory Authority Related to Communication Accessibility for Persons with Disabilities http://www.myicommunicator.com/?action=regulatory
The Ethics of Research with Subjects Who Have Dementia
http://onlineethics.org/reseth/mod/ADreseth.html
The Ethics of Research with Human Subjects Who are Mentally Ill
http://onlineethics.org/reseth/mod/mentres.html
DISPARITIES
Inaugural Health Education Research Disparities Summit: Health Disparities & Social Inequities (8/8/2005) At Society of Public Health Education-sponsored summit
HealthCast
http://cme.kff.org/Key=8762.D3l.H.D.Dry3bx or
http://cme.kff.org/Key=8854.D3C.H.D.YsJPP
"Unequal Medical Treatment," (Online News Hour_, 8/18/05).
http://www.pbs.org/newshour/bb/health/july-dec05/
unequal_8-18.html
Health Disparity Radio http://www.the4dgroup.com/WebRadio/default.asp
Equity Measures and Systems Reform as Tools for Reducing Racial & Ethnic Disparities in Health Care SD Watson, J.D., The Commonwealth Fund, Aug 2005, V776 [24p.pdf] at: http://www.cmwf.org/usr_doc/776_Watson_equity_measures_
systems_reform.pdf
Summary at http://www.cmwf.org/publications/publications_show.htm?
doc_id=289303&#doc289303
Eliminating Disparities in Treatment and the Struggle to End Segregation, a case for transforming health care reform into a civil rights issue.
http://www.cmwf.org/usr_doc/775_Smith_ending_disparities_in_treatment.pdf
Summary at http://www.cmwf.org/publications/publications_show.htm?
doc_id=289279&#doc289279
Tackling Health Inequalities: Status Report on the Programme for Action (Dept of Health, England 11 Aug 2005) = plans to tackle health inequalities over the next 3 yrs . [85p. pdf ] at http://www.dh.gov.uk/assetRoot/04/11/76/98/04117698.pdf
See also BBC News Story
http://news.bbc.co.uk/1/hi/health/4139440.stm .
The Ethics of Research with Vulnerable Populations
http://onlineethics.org/reseth/mod/vulnres.html
DIVERSITY / ETHNICITY / MULTICULTURALISM
Non-English Materials and Resources from the Maternal-Child Health Library online catalog, MCHLine®, http://www.mchlibrary.info/nonenglish.html
Racial/Ethnic Diversity in Health Services Research: Pockets of Progress but a Long Way to Go
Final report submitted to WK Kellogg Foundation, AcademyHealth, Washington DC, 2005 [57p. pdf] at: http://www.academyhealth.org/diversity/report.pdf
Intercultural Disposition and Communication Competence of Future Pharmacists MB Shah, S King, AS Patel Nov 2004.
http://www.ajpe.org/aj6805/aj6805111/aj6805111.pdf or
http://www.ajpe.org/view.asp?art=aj6805111&pdf=yes
Indian Health Student Resources High School, Undergraduates and Graduates http://www.aaip.com/student/index3.html
Indigenous knowledge Systems - the true roots of humanism
http://www.ifla.org/IV/ifla71/papers/183e-Magga.pdf
Migratory Narratives: Why Some Stories Replicate Across Media, Cultures, Historical Eras http://mitworld.mit.edu/video/281/
In Part 1 of Media in Transition: The Work of Stories series, panelists discuss the stories and myths endure over time through cultures and across multiple media platforms. Part of MIT Media in Transition conference, May 6-8, 2005, explored storytelling as a cultural practice with profs in MIT's Graduate Program in Science Writing, roundtable on "narratives of science." http://web.mit.edu/comm-forum/mit4/index.html Video date: May 6, 2005
E-HEALTH / TELEHEALTH /CYBERMEDICINE / HIT
Turning the Corner with First Nation Telehealth (Kkeewaytinook Okimakanak Telehealth First Nations May 2005 J Community Informatics V1#3 2005
http://www.ci-journal.net/docs/KOTelehealth-Position-Paper-
May2005.pdf
Standards for health care telematics http://www.tft.tele.no/telemedisin/telektronikk/art10.html
Knowledge Formation and the use of a Web-based E-Messaging System in Healthcare. Mats Edenius, Alf Westelius (Sweden)
http://userpage.fu-berlin.de/~jmueller/itsnew/abstracts/
Abstracts/Edenius_Westelius.doc
Ethical Issues in Providing Online Psychotherapeutic Interventions. Childress CA.J Med Internet Res 2000;2(1):e5 http://www.jmir.org/2000/1/e5
An Internet-Based Patient-Provider Communication System: Randomized Controlled Trial Chen-Tan Lin, L Wittevrongel, L Moore, BL Beaty, SE Ross J Med Internet Res 2005 (Aug 5); 7(4):e47: http://www.jmir.org/2005/4/e47/
Guidelines for Physician-Patient Electronic Communications (AMA)
http://www.ama-assn.org/ama/pub/category/2386.html
Using Telephone Support to Manage Chronic Disease Jun 2005 (CA Health Care Foundation 32 p. ) http://www.chcf.org/documents/chronicdisease/UsingTelephone
SupportToManageChronicDisease.pdf
E-JOURNALS
Journal of Community Informatics – not much about health (yet?) http://ci-journal.net/ -
sponsored by CIRN http://www.ciresearch.net/
LANGUAGE@INTERNET is a new open access, peer-reviewed electronic journal
http://www.languageatinternet.de/ LANGUAGE@INTERNET will focus research on “the pivotal role of language under the new medial conditions of use and interacting with the various societal domains.”
JOLT: Journal of Online Learning and Teaching at http://jolt.merlot.org/ by MERLOT
(http://www.merlot.org/Home.po) is a new peer-reviewed, online publication addressing the scholarly use of multimedia resources in education in general—nothing health related (yet?)
The Center for Health and Health Care in Schools. New publication - The Weekly Insider update includes grant and news alerts published during the preceding week, a summary of new postings to the web site, and information about Center activities
http://www.healthinschools.org/insider/enews83005.htm
ELECTRONIC MEDICAL RECORD (EMR, HER)
Implementing an electronic medical record in a family medicine practice: communication, decision making, and conflict. JC. Crosson et al Ann Fam Med. 2005 Jul-Aug;3(4):307-11.
http://www.annfammed.org/cgi/content/full/3/4/307
Personal Health Records and Sharing Patient Information (NHS) http://www.connectingforhealth.nhs.uk/worldview/protti7/ or
Pdf http://www.connectingforhealth.nhs.uk/worldview/protti7/
index_html/html2pdf
Electronic Health Records: Synthesizing Recent Evidence and Current Policy (Mathematica Policy Research ) Aug 2005 Issue Brief re: federal efforts to speed providers' adoption of electronic health records
http://www.mathematica-mpr.com/publications/pdfs/
electronichealth.pdf
EMERGENCY PREPAREDNESS
Emergency Preparedness Communication Options
http://www.gnyha.org/eprc/general/datacomm/
CommunicationsMatrix.pdf
Emergency Preparedness, Bioterrorism, and the States:The First Two Years after September 11
by GMarkowitz & D Rosner June 2004
http://www.milbank.org/reports/SEPT110406/SEPT110406.html
Preparedness planning for state health officials : interstate planning for the strategic national stockpile : supplement on legal issues
http://www.astho.org/pubs/SNS%5Fsupplement.pdf
Emergency Preparedness: A Quick Guide for School Staff
http://www.healthinschools.org/sh/emerg.asp
What Internet Services Would Patients Like From Hospitals During an Epidemic? Lessons From the SARS Outbreak in Toronto CA Rizo, et al J Med Internet Res 2005 (Aug 3); 7(4):e46 Open Access (HTML) http://www.jmir.org/2005/4/e46/
Communicating During a Crisis
http://www.users.cloud9.net/~kvivian/html/feature__communicating
_during_.html
Communicating During a Crisis (Portland Public Schools)
http://159.191.14.139/.docs/pg/10308
Crisis communication - eMedicine
http://www.emedicine.com/med/topic3399.htm update 6/20/05
EMPOWERMENT / DECISION-MAKING / CONSUMERISM / SELF-MANAGEMENT
Promoting and Enabling Healthy Choices: Linking the Desire for Health with the Decisions & Tools that Support Health [203 p.]
http://www.wrgh.org/docs/WEVH_HC05Report.pdf
Shared Decision Making Bibliography (fulltext of papers submitted by members of Foundation for Informed Medical Decision Making)
http://www.fimdm.org/bibliography.php
Physician-Patient Relations: No More Models, G Clarke, R Hall, Greg R, 2004. Am J Bioethics 4(2):W16-W19. Authors state that common theoretical models of “preferred” decision-making relationships don’t correspond well with clinical experience
http://www.bioethics.net/journal/j_articles.php?aid=101
National Health Care Working Group Discussion (8/16/2005) The Group is charged by Congress to engage the American people in an informed national public debate to help make choices about health care services HealthCast http://cme.kff.org/Key=8872.D2w.J.D.NC1ZH4
Also http://www.kaisernetwork.org/health_cast/hcast_index.cfm?
display=detail&hc=1491
Patient Self-Management Tools: An Overview (Calif Health Care Foundation, June 2005) http://www.chcf.org/documents/chronicdisease/PatientSelfManagement
ToolsOverview.pdf
Also http://www.chcf.org/topics/chronicdisease/index.cfm?itemID=111783
Communicating with Congress: How Capitol Hill is Coping with the Surge in Citizen Advocacy.
Summary of Key Findings
http://www.cmfweb.org/cwcsummary.asp
Overview with links to full report & sections
http://www.cmfweb.org/cwcreport1.asp
A Consumer Guide to Handling Disputes with Your Employer or Private Health Plan, 2005 Update (Consumers’ Union & KFF Aug 2005) http://www.kff.org/consumerguide/7350.cfm
Statement on Consumer and Community Participation in Health and Medical Research (the Statement on Participation) (Australian Govt Dec 2004) Description http://www7.health.gov.au/nhmrc/publications/synopses/r22syn.htm
Report http://www7.health.gov.au/nhmrc/publications/_files/r33.pdf
Resource Pack http://www7.health.gov.au/nhmrc/publications/_files/r34.pdf
Expanding Meanings of Health (re: business implications of trends transforming the consumer health landscape/market, “burden of empowerment,” etc.) Includes charts & graphs, tables. (Institute for the Future, Jan 2004)
http://www.iftf.org/docs/SR-815B_Meanings_of_Health.pdf
Now You Have a Diagnosis:What's Next?
http://www.ahrq.gov/consumer/diaginfo.htm
London Patient Choice Project Evaluation: A Model of Patients' Choices of Hospital from Stated and Revealed Preference Choice Data. Burge P, Devlin N, Appleby J, Rohr C, Grant J., Rand, 2005, http://www.rand.org/publications/TR/TR230/
EVIDENCE BASED
Pathways to "Evidence-Informed" Policy and Practice: A Framework for Action, S Bowen & AB Zwi (2005) PLoS Med 2(7): e166:
http://dx.doi.org/10.1371/journal.pmed.0020166
“….A key challenge to public health is to better contextualize evidence for more effective policymaking and practice…”
GAMING
“First-Ever Games For Health Conference”
http://www.g4tv.com/html/news.asp?news_key=471
More at http://wired-vig.wired.com/news/medtech/0,1286,64939,00.html?
tw=wn_tophead_1
UPCOMING 2005 Games for Health
http://www.gamesforhealth.org/events.html
G4 videogame TV is a 24/7 TV network dedicated to all things videogames since Apr 2002. It airs all-original programming covering every aspect of the videogame culture & is available in 53 million cable and satellite homes nationwide.
http://www.g4tv.com.
GENDER
“Key Website Research Highlights Gender Bias” 17 Aug 2005 A study conducted at the U of Glamorgan “proves” that what aesthetically appeals to males & females when Web surfing differs http://www.glam.ac.uk/news/releases/003056.php
Strategies of Inclusion: Gender & the Information Society (SIGIS)
http://www.rcss.ed.ac.uk/sigis/index.html
More Gender, ICTs and Inclusion
http://www.rcss.ed.ac.uk/sigis/public/externalsites
anddocs.php
Gender & Gaming
http://www.igda.org/women/resources_researchers.htm
GENETICS / GENOMICS
Special Issues in Conducting Human Genetic Research
http://onlineethics.org/reseth/mod/genres.html
A Vision for the Future of Genomics Research FS Collins, ED Green, AE Guttmacher & MS Guyer on behalf of the National Human Genome Research Institute Nature, Vol. 422, No. 6934, April 24, 2003, p. 835-847 http://www.genome.gov/11007524
BrainPop DNA educational animation
http://www.brainpop.com/health/cellsandbodybasics/dna/zoom.weml
National DNA Day Web casts
http://www.genome.gov/14514276
From the Blueprint to you
http://www.genome.gov/12511466
Exploring our Molecular Selves Exploring Our Molecular Selvess is a multimedia educational kit created by.
More at http://www.genome.gov/Pages/EducationKit/
Understanding Genetics [Macromedia Flash Player]
http://www.thetech.org/exhibits/online/ugenetics/
From the Tech Museum of Innovation in San Jose for non-jargon-laden answers to "What is a gene?" & "How do genes work” & activities
GLOBAL / DEVELOPMENT
Health and the Millennium Development Goals is at:
www.who.int/mdg/publications/mdg_report/en/index.html
Bulletin of the World Health Org V83#8, Aug 2005 . This month’s special theme: Health information systems; Gauging a response to humanitarian emergencies; Good data is vital for poverty reduction http://www.who.int/bulletin/volumes/83/8/en/
Involving the Community: A Guide to Participatory Development Communication (IDRC 2004) G. Bessette
http://web.idrc.ca/openebooks/066-7/
Description http://web.idrc.ca/en/ev-52226-201-1-DO_TOPIC.html
Integrating efforts to prevent HIV, other STI's, and pregnancy among teens in developing countries : three case studies 2005 http://www.advocatesforyouth.org/publications/iag/integrating%5
Fdeveloping.pdf
The global distribution of risk factors by poverty level T Blakely et al Bull of the WHO V83(2) Fe 2005
http://www.who.int/bulletin/volumes/83/2/118.pdf
USAID Office of Health, Infectious Diseases, & Nutrition (HIDN) approach to research & research translation/introduction into use via the Health Research Program (HaRP).
http://www.harpnet.org/
- More USAID funded The Population, Health and Nutrition Information (PHNI) publications re: global health http://www.phnip.com/portfolio/pubs.html
The health impacts of globalisation: a conceptual framework. 3 Aug 2005 Globalization and Health 2005, 1:14 http://www.globalizationandhealth.com/content/pdf/
1744-8603-1-14.pdf
Abstract & other links http://www.globalizationandhealth.com/content/1/1/14
Preparing for the Next Pandemic. Foreign Affairs, Jul/Aug 2005 “What if the pandemic begins tonight? What if it starts one year from now? What if the world is so fortunate as to have an entire decade to prepare? http://www.foreignaffairs.org/20050701faessay84402-p0/michael-t-osterholm/
preparing-for-the-next-pandemic.html Or
http://www.foreignaffairs.org/20050701faessay84402/michael-t-osterholm/
preparing-for-the-next-pandemic.html
Communicable diseases in complex emergencies: impact and challenges
Lancet. 2004 Nov 27-Dec 3;364(9449):1974-83. Connolly MA, Gayer M, et al
http://www.who.int/infectious-disease-news/IDdocs/Lancet_CDs_
complex_emergencies.pdf
Communicable Disease Control in Emergencies, A Field Manual,
http://www.who.int/infectious-disease-news/IDdocs/whocds200527/
whocds200527chapters/index.htm
Contents and Acknowledgements ; Introduction ; Chapter 1. Rapid assessment ; Chapter 2. Prevention
; Chapter 3. Surveillance ; Chapter 4. Outbreak control ; Chapter 5. Disease prevention and control ; Annexes 1-8 ; Annexes 9-17
HEALTH EDUCATION / PATIENT EDUCATION
“Network 2 is committed to providing resources to help veterans take charge of their own health and wellness.” http://www1.va.gov/visns/visn02/vet/ed/ updated Sep 7 2005
Wired for Health Web site (UK) http://www.wiredforhealth.gov.uk/ is a series of sites managed by the Health Devt Agency on behalf of the UK Dept of Health and the Dept for Education & Skills.Health info (for a range of audiences) relates to the National Curriculum & the National Healthy School Standard.
Educational Tool Kit on Beverage Alcohol Consumption and Standard Drinks http://www.alcoholtoolkit.org/discusOnline.html
More alcohol and health material
http://www.discus.org/industry/alcoholandhealth.htm
PowerPointts, handouts and more for various audiences, including allied health professionals, teachers, school personnel, parents, or med students/residents. Each presentation includes extensive speaker notes pages from the American Academy of Allergy, Asthma and Immunology (AAAAI)
http://www.aaaai.org/members/allied_health/tool_kit/
See also the “patient gallery” http://www.aaaai.org/patients/gallery/ , and other pt links at http://www.aaaai.org/patients/resources/
BrainPop animated health ed topics
http://www.brainpop.com/health/seeall/
BrainPop homepage
http://www.brainpop.com/
HEALTH LITERACY
National Literacy and Health Research Program Needs assessment and Environmental Scan. I Rootman et al 36 p pdf http://www.nlhp.cpha.ca/clhrp/needs_e/needs_e.pdf
Literacy and health research in Canada - Where have we been and where should we go? Rootman I, http://www.nlhp.cpha.ca/lithlthe/cover.htm
Literacy and Health Research in Canada: What We Have Learned and What Can Help in the Future?
I Rootman & B Ronson
http://www.nlhp.cpha.ca/lithlthe/2.htm
Camerlain M, Richard N Bridging the literacy GAP BONE 36: S443-S443 Suppl. 2 JUN 2005 http://publishorperish.nih.gov/Gateway.cgi?KeyUT
=000229979900743
The impact of low health literacy on the medical costs of Medicare managed care enrollees (vol 118, pg 371, 2005) Howard DH, Gazmararian J, Parker RM. Am J Med V118#8 Aug 2005 http://publishorperish.nih.gov/Gateway.cgi?KeyUT
=000231037100031
The role of literacy in health and health care. Am Fam Physician V72#3: Aug 1 2005 (lower half of page) http://www.aafp.org/afp/20050801/editorials.html
Health literacy: The gap between physicians and patients, Safeer RS, Keenan J
Am Fam Physician V72#3 Aug 1 2005
http://www.aafp.org/afp/20050801/463.html
Identifying Medicare beneficiaries with poor health literacy skills : is a short screening index feasible? AARP 2005 http://assets.aarp.org/rgcenter/health/2005%5F01%
5Fliteracy.pdf
Why the next census needs to ask about language. BMJ Editorial BMJ 2005;331:363-364 (13 Aug),
http://bmj.bmjjournals.com/cgi/content/full/331/7513/
363?ecoll
Language & Linguistics: A Special Report (NSF)
http://www.nsf.gov/news/special_reports/linguistics/
index.jsp
International Literacy Day 2005 - Women Still Left Behind UNESCO Fact Sheet
http://www.uis.unesco.org/file_download.php?URL_ID=6264&
filename=11261693371UIS_factsheet_06_EN.pdf&filetype=application%2Fpdf&
filesize=124456&name=UIS_factsheet_06_EN.pdf&location=user-S/
Clear Writing (Utah)
http://uuhsc.utah.edu/pated/authors/
Adult Literacy & Multiple Intelligence
http://literacyworks.org/mi/flash.html
Adult Multiple Intelligences
http://pzweb.harvard.edu/ami/
Why Literacy Matters (2003)
http://la.cancer.gov/october_2003.html
Cognitive Neuroscience (George A. Miller lecture by Michael I Posner)
http://darkwing.uoregon.edu/%7Emposner/miller.html
http://darkwing.uoregon.edu/%7Emposner/background.html
HEALTHCARE DELIVERY / QUALITY / INSURANCE
A Nation’s Health at Risk III: Growing Uninsured, Budget Cutbacks Challenge President's Initiative to Put a Health Ctr in Every Poor County - 3/2005
http://www.nachc.com/pubmgr/Files/IB/poorcountiesSTIB9.pdf
Health on the Hill from kaisernetwork.org and CQ about Healthcare for the poor, Stem Cells, Health IT
http://cme.kff.org/Key=9075.DKc.C.D.kNWqt A podcast is also available for this report.
News Conference: Income, Poverty, Health Insurance & American Community Survey 8/30/2005 U.S. Census Bureau http://www.census.gov/Press-Release/www/releases/archives/
news_conferences/005515.html
Kaisernetwork.org sources for more information
http://www.kaisernetwork.org/health_cast/hcast_index.cfm?display=links&
hc=1501&linkcat=48
Top Ten Impediments to Better Health & Health Care in the US (SR-900, May 2005, Health Horizons Program) Slides, May 2005 http://www.iftf.org/docs/SR-900_Top_Ten_
Impediments_Intro.pdf
The Safety Net on the Edge: financial challenges health centers face in providing affordable health care due to rising numbers of uninsured Americans, Medicaid cuts. NACHC Report:.
Press Release http://www.nachc.com/press/safetynet.asp
Aug 2005 23 p. report http://www.nachc.com/research/Files/SNreport2005.pdf
Covering Kids & Families Back-to-School Campaign Launch RWJ Foundation
http://cme.kff.org/Key=8651.DND.C.D.CJ6CGc to enroll uninsured children in Medicaid and State Children’s Health Insurance Programs (SCHIP).
Health Care: Universal Coverage (Multiple Links from Century Foundation)
http://www.tcf.org/list.asp?type=IN&pubid={76A5A960-EA1C-4187-
B096-B43E01DB868F}
NHS Communications Tool Kit Jul 2005
http://www.connectingforhealth.nhs.uk/publications/
toolkitjuly05
KCMU Report Shows Children's Enrollment in SCHIP Increased Modestly in 2004 reversing the enrollment decline trends which began in June 2003 http://www.kff.org/medicaid/7348.cfm and
http://www.kff.org/medicaid/7349.cfm
HIV/AIDS
HIV/AIDS Fact Sheets Updated: - "The Global HIV/AIDS Epidemic," "The HIV/AIDS Epidemic in the United States," "Medicaid and HIV/AIDS," and "Medicare and HIV/AIDS." at:
http://www.kff.org/content/factsheets.cfm .
Science Magazine Examines HIV Prevention Strategies
http://www.kaisernetwork.org/daily_reports/rep_index.cfm
?DR_ID=32001
KCMU Report Examines Characteristics of Nursing Home Residents 65 discharged back to the community over 1yr & those who remain in nursing homes for 90 days or longer at:
http://www.kff.org/medicaid/7386.cfm .
Cross-Cultural Issues in HIV/AIDS Palliative Care (Culture & Ethnicity in End-of-Life Communication) http://depts.washington.edu/pallcare/training/curriculum_pdfs/
CultureModule.pdf
Behind the veil of a public health crisis : HIVAIDS in the Muslim world 2005 http://www.aei.org/docLib/20050608%5FeberstadtNBRreport.pdf
Peace Tiles, a “visual voice” of children & youth affected by, or at risk of, HIV/AIDS who “give expression to the memories, hopes & challenges of children & youth impacted by HIV and AIDS: messages for each other and the world.”
http://www.tagstudio.net/devarts/index.php?q=peacetiles
BrainPop AIDS educational animation
http://www.brainpop.com/health/diseasesandconditions/aids/
Cost-Effective Allocation Of Government Funds To Prevent HIV Infection. Cohen DA, Wu S-Y, Farley TA. Health Affairs 24, No. 4, Jul-Aug 2005.
News Release http://www.rand.org/news/press.05/07.12.html
Fact Sheet: http://www.rand.org/publications/RB/RB9132/
Brief Pdf: http://www.rand.org/publications/RB/RB9132/RAND_RB9132.pdf
Abstract: http://www.rand.org/health/feature/hiv.sexbehavior/
cohen_050712.html
The HIV Cost and Services Utilization Study (HCSUS) was the first major research effort to collect information on a nationally representative sample of people in care for HIV infection.
http://www.rand.org/health/hcsus/
Bibliography at http://www.rand.org/health/hcsus/bibliography/paper.html
Research Brief links at http://www.rand.org/health/hcsus/bibliography/rb.html
HIV Voluntary Counseling and Testing: Skills Training Curriculum Prticipant's Manual (92p, Jan 05)
http://www.fhi.org/NR/rdonlyres/e6hgusprlxxcn4ztimwc7b653uzut
lpijclbc3dirspupup4ueo7quzn7qeqq5lgv7iwso3wllf6tp/VCTParticipantsManual.pdf
Description http://www.fhi.org/en/HIVAIDS/pub/guide/vcttrain2.htm
HUMANITIES
When Medicine Meets Literature http://www.sciam.com/article.cfm?chanID=sa006&colID=30&
articleID=000E87FC-73D3-1264-B1DB83414B7F0000
ICT / INTERNET/ 21st Century Literacy
Internet Communication as a Tool for Qualitative Research AN. Markham draft of a chapter in Qualitative Research: Theory, Methods, and Practice, D Silverman, ed. Please contact the author before citing this work. http://faculty.uvi.edu/users/amarkha/writing/silvermandraft.html
In depth: E-strategies: constructing the information society
http://www.choike.org/nuevo_eng/informes/3195.html
A Global Imperative: The Report of the 21st Century Literacy Summit convened by The New Media Consortium (NMC), & cosponsored by Adobe Systems, the George Lucas Educational Foundation, & the MacArthur Foundation. The 32-p rept is at http://www.nmc.org/pdf/Global_Imperative.pdf
How Big is the Web? The Indexable Web is more than 11.5 billion pages as of Jan 2005. http://www.kdnuggets.com/news/2005/n13/8i.html
MARKETING
Hey Kidz, Buy This Book! is at:
http://www.anneelizabethmoore.com/SS-299_Hey_Kidz2.pdf
A description is at http://www.anneelizabethmoore.com
It includes a bibliography and Web links in its ap’pendixes.
The Ad*Access Project, funded by the Duke Endowment "Library 2000" Fund, has images & database info for 7,000+ ads printed in U.S. & Canadian newspapers &d magazines 1911 -1955 You can search for health ads, among others http://scriptorium.lib.duke.edu/adaccess/
Mass media critically. Description & link to the audio file at:
http://www.kqed.org/epArchive/R508031000
PBS resources for parents on Children & Media
http://www.pbs.org/parents/childrenandmedia/
Television Teaches: What are our kids Learning http://kids.discovery.com/fansites/readysetlearn/grownups/gallery/paz_guide_all.pdf
The Media Can Legally Lie
http://projectcensored.org/publications/2005/11.html
Marketing, Self-Regulation & Obesity links (includes links to presentations from July 15-15, 2005, workshop) http://www.ftc.gov/bcp/workshops/foodmarketingtokids/
To quell obesity, who should regulate food marketing to children? Global Health. 2005 Jul 14;1(1):9
http://www.globalizationandhealth.com/content/pdf/1744-8603-1-9.pdf
Distilled Spirits Council of the U.S., Inc. (OSPA) Code of Responsible Practices (effective self-regulation through a voluntary advertising code)
http://www.discus.org/industry/code/sacr.htm
DISCUS homepage at:
http://www.discus.org/industry/perspective.htm
Distilled Spirits Industry Semi-Annual Report on Alcohol Advertising Complaints, released Aug 4, 2005 - Code, Review Board Process cited as model for corporate America -2nd ed. of its Semi-Annual Code Report detailing complaints re: 17 alcohol ads, actions by the industry’s internal review board &d the response by each advertiser. The report covers Code complaints from 1/1/05 thru 6/30/05
Teaching the Language of the Image: 24 Persuasive Techniques (ACME)
http://www.acmecoalition.org/documents/toolspersasion.pdf
More ACME Media Literacy links http://www.acmecoalition.org/
MEDIA
What Are the Roles and Responsibilities of the Media in Disseminating Health Information? The PLoS Medicine Debate Jul 2005
Full text http://medicine.plosjournals.org/perlserv/?request=get-document&doi=
10.1371/journal.pmed.0020215
Print PDF (1312K)
Mastering the Key Elements of Working with the Media
http://www.futureofaging.org/PublicationFiles/V5N9.pdf
Media Literacy Aug 3, 2005 1-hr conversation on KQED FM's Forum program, looks at learning to "read"
Migratory Narratives: Why Some Stories Replicate Across Media, Cultures, Historical Eras
http://mitworld.mit.edu/video/281/ Part One of the Media in Transition: The Work of Stories series, panelists discuss why stories & myths endure over time, through cultures, & across multiple media platforms. Part of MIT Media in Transition conf , May 6-8, 2005, explored storytelling as a cultural practice. with profs in MIT's Graduate Program in Science Writing, roundtable on "narratives of science."
http://web.mit.edu/comm-forum/mit4/index.html on May 6, 2005 1:30 PM
Melici – short for Media, Literacy & Citizenship— is a European Journalism Ctr (EJC) project to encourage interaction & discussion between European citizens & the media. It analyzes cases of citizen & media interactivity & looks at the present & potential role of new comm. technologies to stimulate interaction. http://www.ijnet.org/FE_Article/newsarticle.asp?UILang=1&CId=
303242&CIdLang=1
The Web site is at http://www.ejc.nl/melici.
Bibliography for Media and Anthropology
http://nosferatu.cas.usf.edu/anthropology/media/pathbib.htm
Includes a Mass Comm and Journalism section. From the dept of Anthropology Univ S. Fla http://nosferatu.cas.usf.edu/anthropology/media/
ORGAN DONATION
Are Organs Personal Property or a Societal Resource? RD Truog er al AJOB 2005; 5(4):14
http://taylorandfrancis.metapress.com/media/H4GNTJQXQL8HJFH4UC5V/
Contributions/R/1/5/1/R151465665385412_html/fulltext.htm
OR http://taylorandfrancis.metapress.com/media/927Y4CKDWJ1VTKE1VCBY/
Contributions/R/1/5/1/R151465665385412.pdf
Organ Donation.gov Web site
http://www.organdonor.gov/
PHARMACEUTICALS
Prescription drug use among midlife and older Americans AARP, 35 p. 2005
http://assets.aarp.org/rgcenter/health/rx%5Fmidlife%5Fplus.pdf
Physicians' attitudes and practices regarding generic drugs AARP, 33 p. Mar 2005 http://assets.aarp.org/rgcenter/health/phys%5Fgeneric.pdf
America’s Pharmaceutical Industry Announces Guidelines on Direct-to-Consumer Advertising (Aug 2 2005) http://www.phrma.org/mediaroom/press/releases/02.08.2005.1195.cfm
Highlights of innovative drug therapies that are now taken for granted
http://dev.innovation.org/impact/then-now.php
More innovations: http://www.innovation.org/
PRIVACY / HIPAA
State of HIPAA privacy and security compliance : a report by the Am Health Information Mgt Assn. 2005 http://www.ahima.org/marketing/email%5Fimages/2005PrivacySecurity.pdf
HIPAA Legislation in Searchable askSam Database http://www.asksam.com/releases.asp?file=press.ask&b=PR%3a%
20HIPAA%20in%20askSam
Patriot Act Debates http://www.patriotdebates.com/ (up-to-date blog)
PUBLIC HEALTH
Tests to Evaluate Public Health Disease Reporting Systems in Local Public Health Agencies. Dausey DJ, Lurie N, Diamond A, Meade B, Molander RC, Ricci K, Stoto MA, Wasserman J.,[Rand, 2005], operations manual with standardized proficiency tests to help public health agencies evaluate effectiveness of their own disease reporting systems & responsiveness to case reports 24/7.
Description: http://www.rand.org/publications/TR/TR260/ or 97 p. Document: http://www.rand.org/pubs/technical_reports/2005/RAND_TR-260.pdf
Grading evidence & recommendations for public health intervention: developing & piloting a framework http://www.publichealth.nice.org.uk/download.aspx?o=503421
(NHS Apr 2005)
Mass campaigns vs general health services: what have we learnt in 40 yrs about vertical vs. horizontal approaches? A Mills Bull of the WHO V83(4) Ap 2005
http://www.who.int/bulletin/volumes/83/4/315.pdf
Tests to Evaluate Public Health Disease Reporting Systems in Local Public Health Agencies. An operations manual for public health agencies to evaluate their effectiveness Dausey DJ, Lurie N, Diamond A, Meade B, Molander RC, Ricci K, Stoto MA, Wasserman J., 2005.
http://www.rand.org/publications/TR/TR260/
Health Information systems and humanitarian emergencies Bulletin of the World Health Organization, WHO. V83#8, Aug 2005 Special Theme: http://www.who.int/bulletin/volumes/83/8/en/ including: - Structuring information systems to improve health - S Stansfield HTML / Full Text [pdf 57kb]
- Access to health information systems - KM McGrail & C Black HTML | Full Text [pdf 57kb]
- Building health information systems in the context of national strategies for the development of statistics- T Williams HTML | Full Text [pdf 56kb]
- Costs and results of information systems - Abstract [HTML] | Full Text [pdf 250kb]
Health information systems: the foundations of public health Abstract [HTML] | Full Text [pdf 181kb]
- Health information systems in humanitarian emergencies- Abstract [HTML] | Full Text [pdf 220kb]
- Harmonizing information systems - Abstract [HTML] | Full Text [pdf 260kb]
- Health information systems and equity challenges- Abstract [HTML] | Full Text [pdf 265kb]
VA Influenza / Pneumococcal ToolKit 2003-4 (80 p.) Includes Immunization Web sites, other sources
http://vhaaidsinfo.cio.med.va.gov/watch/VA%20FluToolkit.pdf
Immunization Essentials: A Practical field guide 275p. 2003 http://www.phnip.com/portfolio/pub_examples/immunizationessentials.pdf
RISK
Communicating with Patients about Harms and Risks A Herxheimer
V2 #2 Fe 2005
http://medicine.plosjournals.org/perlserv/?request=get-document&doi=
10.1371/journal.pmed.0020042
Managing risks to the public: appraisal guidance. HM Treasury, London June 2005 [62p. pdf ] at:
http://www.hm-treasury.gov.uk/media/8AB/54/Managing_risks_to_the_public.pdf
“….The document provides guidance for developing and assessing proposals that affect the risk of fatalities, injury and other harms to the public in line with the Government’s Principles of Managing
Risks to the Public
Related Publications: GreenBook:
http://www.hm-treasury.gov.uk/greenbook .
Management of Risk – Principles and Concepts: http://www.hmtreasury.gov.uk./documents/public_spending_and_services/
audit_and_accounting/pss_aud_risk04.cfm .
The new Canary database from Yale Univ is woefully lacking in risk COMMUNICATION citations… I found only 4 http://canarydatabase.org/
SAFETY / MEDICAL ERRORS
Responsibility for Bugs and Errors http://onlineethics.org/reseth/mod/bugs-errs.html
The Joint Commission International Ctr for Pt Safety.
http://www.jcipatientsafety.org/ resource ctr (JCAHO & the Joint Commission Resources Mar 2005) for pt safety info. More links at http://www.jcipatientsafety.org/show.asp?durki=9334
SCHOLARLY PUBLISHING
Responsible Authorship
http://onlineethics.org/reseth/mod/auth.html
A Case Study of a Retracted Systematic Review on Interactive Health Communication Applications: Impact on Media, Scientists, and Patients R Rada, JMIR Jun 2005
http://www.jmir.org/2005/2/e18/
Open Access and Scholarly Communication -- A Selection of Key Web Sites
by H Kwasik & PO Fulda
http://www.istl.org/05-summer/internet.html
To Print or Not to Print Medical Textbooks: Is That the Question?
http://www.istl.org/05-summer/viewpoints.html
Responsibilities in the Editing and Reviewing of Journal Articles and Grant Applications http://onlineethics.org/reseth/mod/publ.html
The Collection, Retention, Sharing, and Interpretation of Data
http://onlineethics.org/reseth/mod/data.html
SCIENCE COMM
History of Science Communication and the Public syllabus http://core.ecu.edu/engl/henzeb/7750spring2004/7750L2.HTM
SPIRITUALITY
Patients’ Religious and Spiritual Lives (U SC Med School site) http://www.musc.edu/dfm/Spirituality/patients%20Spiritual%20Lives.htm
Patient Attitudes Concerning Physician Inquiry About Spiritual/Religious Beliefs
JW. Ehman BB Ott, TH Short, RC Ciampa, & J Hansen-Flaschen http://www.uphs.upenn.edu/pastoral/resed/summary.html
Spirituality & Medicine: Ethical Topic in Medicine
http://depts.washington.edu/bioethx/topics/spirit.html
Editorials: Religion, spirituality and health: an American physician's response MJA 2003 178 (2): 51-52 (Australian response
http://www.mja.com.au/public/issues/178_02_200103/koe10531_fm.html
Physician Inquiry re: spiritual beliefs
http://www.csc.villanova.edu/~short/MATC/inquiry/
SUBSTANCE ABUSE
FreeVibe.com drug abuse site
http://www.freevibe.com/Drug_Facts/index.asp
Summary of SAMHSA’s National Survey on Drug Use and Health in 2003 re: Youths' Exposure to Substance Use Prevention Messages, 2003 Based on SAMHSA's
http://www.oas.samhsa.gov/2k5/prevention/prevention.htm
THEORY / METHODOLOGIES
Surveys: Tracking Opinions: Special Report (NSF)
http://www.nsf.gov/news/special_reports/survey/index.jsp
A Synopsis of Social Marketing
http://www.ism.stir.ac.uk/pdf_docs/social_marketing.pdf
& Introduction to Social Marketing
http://www.ism.stir.ac.uk/social_marketing.htm --both by the
Institute for Social Marketing (UK)
http://www.ism.stir.ac.uk/
Theory Clusters
http://www.tcw.utwente.nl/theorieenoverzicht/Theory%20clusters/index.html
TeCFlow – A Temporal Communication Flow Visualizer. for Social Network Analysis
http://mba.tuck.dartmouth.edu/digital/Research/AcademicPublications/
GloorTeCFlow.pdf
Social Network Analysis: Introduction and Resources
http://lrs.ed.uiuc.edu/tse-portal/analysis/social-network-analysis/
What do we know about how to do audit and feedback? Pitfalls in applying evidence from a systematic review Foy R, Eccles M, et al BMC Health Services Research 2005, 5:50 (13 July 2005)
http://www.biomedcentral.com/1472-6963/5/50
Diffusion of Innovation in Health Care (the Institute for the Future, 2002) http://www.chcf.org/documents/ihealth/DiffusionofInnovation.pdf
Communication Models
http://www.shkaminski.com/Classes/Handouts/Communication%20Models.htm
Rhetorical Situation
http://www.tracybridgeford.com/resources/rhetsitaa.pdf
Analyzing the Rhetorical Situation
http://www.shkaminski.com/Classes/Handouts/Analyzing%20the%20
Rhetorical%20Situation.htm
Rhetorical Situation definition
http://lingua.utdallas.edu:7000/1280/
The Coordinated Management of Meaning (CMM) from Theories of Communication Incorporating Culture (or From Theorizing Communication and Culture?) William Gudykunst (Ed.).This chapter introduces CMM by using some of its concepts and models in an analysis of 2 communication events.
http://www.pearceassociates.com/essays/cmm_pearce.pdf
W. Barnett Pearce's page at:
http://www.pearceassociates.com/concepts.htm
What is Rhetoric (from a college of engineering)
http://www.engr.usask.ca/dept/techcomm/whatis.html
Principles of Tech & Professional Communication Adapted from http://admicanada.com/courses/course_3.asp?id=40
Includes: understanding underlying principles of effective communication during a handoff; sensitivity & skill in assessing the demands of the communication situation ; attending appropriately to both message content & interpersonal relations in a dynamic communication exchange; developing strategies for managing both task & maintenance functions in the handoff communication exchanges ;applying skills to a variety of clinical communicative tasks, oral & written.
Situating New Media Texts: A Practical and Systematic approach to the Rhetorical Situation and Usability Testing LE Steinbacher 52 p. project report for an MA of science rhetoric & tech comm, 2005
VIOLENCE
Why Are Stories Violent?
(MIT http://mitworld.mit.edu/video/282/ ) MIT Communications Forum
Part of the Media in Transition series http://web.mit.edu/comm-forum/mit4/index.html
Part 2 of the series, panelists explore the violent nature of stories and the social consequences of increasing violence in popular culture. Speakers: David Thorburn, MIT Prof Literature, MacVicar Faculty Fellow; Kevin Sandler, Media Industries, The Univ of Arizona ; Maria Tatar, Harvard College Professor & John L. Loeb Professor of Germanic Languages and Literatures
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